About Me

Hello! Thank you for viewing my blogs. I am a mother of two born in the early 80s. My boys were born 5/19/2006 and 5/5/2013. I was diagnosed with Ehlers-Danlos Syndrome Classical in August 2013 after going to a rheumatologist suspected of having an autoimmune problem both by symptoms and blood work. I left the office with an Ehlers-Danlos Syndrome diagnosis. I frequent many Facebook groups including Ehlers-Danlos support sites. I have other diagnostics which will I will list in the archives of my site. I live in the forest area of Indiana. I grew up all over the state of Indiana. My other family shows no signs of hypermobility except for my father who sat in a yoga position with both feet up in his lap. He complained of hand and wrist pains when it came to writing. I am the first and only in my family with this diagnosis. You do not have to be hypermobile to have Ehlers Danlos Syndrome. You do have to be in pain.

During this journey of life with a chronic illness, I hope to pick up friends to exchange support and encouragement.

I remember the appointment very well. The office staff gave me this long word that I had to have them write on a piece of paper for me. I went home and began to research "Ehlers-Danlos Syndrome." I never expected what I found to fit me so incredibly well. I have joined many support groups. Within the support groups, I have learned that there are many more common issues that we have though they are not on the lists available to describe us. One example is that I have yet to find somebody with Ehlers-Danlos Syndrome that does not see halos around lights in the night. As time goes on, I am learning exactly how debilitating this condition is. Although the pain remains the same, the stiffness and lack of ability increases.

If you need to contact me and are not a spammer, you may also write an email to my lowercase yahoo address. See combination below:

The email is my first name. amanda

The first letter of my last name. hudson

The number 14


Friday, May 1, 2015

Don't Cry Over Spilled milk!

Don't Cry Over Spilled Milk?

You guessed it! I just bought a gallon of whole milk for my youngest and my wrist gave out and lost it all over the kitchen floor! It looked like a flood. It is not as if it has never happened before. Over the years I have lost countless gallons of milk but today it really got to me. Sometimes my wrist will give out and other times I think I have it on the counter when it was too close to the edge. I had tears.

Some people say there are no coincidences in life. I was just discussing proprioception last night and I can't help but make that connection. My oldest son and I tried the Romberg's Test in which he passed. My knees would lock up in 10-20 seconds trying to prevent myself from going backwards and forwards. I didn't seem to go side to side.

Needless to say my anxiety is up. I was already feeling off today. So much of my kitchen was covered in wasted milk. It was more than just spilling milk. It is the constant nagging feeling that I am a failure and do not live up to standards. A million thoughts of examples just flooded through my head as the milk flooded the floor. It was like a daymare.

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