About Me

Hello! Thank you for viewing my blogs. I am a mother of two born in the early 80s. My boys were born 5/19/2006 and 5/5/2013. I was diagnosed with Ehlers-Danlos Syndrome Classical in August 2013 after going to a rheumatologist suspected of having an autoimmune problem both by symptoms and blood work. I left the office with an Ehlers-Danlos Syndrome diagnosis. I frequent many Facebook groups including Ehlers-Danlos support sites. I have other diagnostics which will I will list in the archives of my site. I live in the forest area of Indiana. I grew up all over the state of Indiana. My other family shows no signs of hypermobility except for my father who sat in a yoga position with both feet up in his lap. He complained of hand and wrist pains when it came to writing. I am the first and only in my family with this diagnosis. You do not have to be hypermobile to have Ehlers Danlos Syndrome. You do have to be in pain.


During this journey of life with a chronic illness, I hope to pick up friends to exchange support and encouragement.


I remember the appointment very well. The office staff gave me this long word that I had to have them write on a piece of paper for me. I went home and began to research "Ehlers-Danlos Syndrome." I never expected what I found to fit me so incredibly well. I have joined many support groups. Within the support groups, I have learned that there are many more common issues that we have though they are not on the lists available to describe us. One example is that I have yet to find somebody with Ehlers-Danlos Syndrome that does not see halos around lights in the night. As time goes on, I am learning exactly how debilitating this condition is. Although the pain remains the same, the stiffness and lack of ability increases.



If you need to contact me and are not a spammer, you may also write an email to my lowercase yahoo address. See combination below:




The email is my first name. amanda

The first letter of my last name. hudson

The number 14

@yahoo.com

Saturday, May 23, 2015

How We Love Hanging Out With Our Friends

Did I ever mention I have a lake in my back yard? 

Well, this is the view from up at our house. It is hard to tell there is a lake back there.


Taking the path that runs along the side of our property reveals the lake close up.

This perfect fishing spot even has room for tents back behind the shot!

If you look really close, you can see the neighbor's boats in the distance.

I love camping, fishing, and all outdoor activities!

But I don't do them.


While everyone is enjoying outdoors on Memorial Day Weekend, I remain indoors creating this blog and grieving for those I have lost and military members who died for our freedom. If you are wondering why on earth I stay cooped up, please let me explain. I have Ehlers Danlos Syndrome in addition to a two and a nine-year-old child. Check out the view from the lake going back home...


That's a steep path!


No matter if we weed-eat it is still a steep road, but there is an end.


Going to the lake and back one time takes away my spoons for about half a day! Imagine what I would be like if I went back up because I forgot something! (I tried it, so I already know.)

If the spoon mention confuses you, please refer to the spoon theory written here.


This photo helps me illustrate.

If I didn't have Ehlers-Danlos Syndrome, I would be making out invitations before every holiday and inviting friends and family down to fish at the lake, have dinner, and enjoy each other's company. 

Thanks for reading! Please share and subscribe!





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