Pain Meds and Me

Pain Medication and Me

I can't decide if I like or hate the pain medication. It seems like we have a love hate relationship going on. I love that I can clean my house and do way more than normal on an average day. There is a lot to catch up on over the many days I was unable. That feeling is overwhelming but knowing I have medication for the days coming gives me hope that I can get caught up and in a decent time frame.

On the other hand, my head feels fuzzy. I feel like I have more irritability and less patience as if that wasn't a problem to begin with! It was. I don't like the idea that I have to pop a pill just to measure up to the ability of the average person. I don't like feeling like my head is fuzzy. I don't like how my body continues to drag as if I am exhausted from the pain I usually feel but am not feeling so much now.

If you are wondering if I am addicted then know that I am not. I have only been on pain meds for 10 days now. I was on them for about 10 years and it was just like this before too. I was on them with xanax too though which not only helped me with my regular anxiety problems but also reduced the increased irritability and loss of patience I am dealing with now. If you are wondering if I am dependent then know that I am. I depend on them to have the abilities of an average person. The pain I deal with everyday is lessoned to the point that I can push through and look like everyone else trying to do so. I will still have my sudden pulled muscle, subluxation, or sprain but not the chronic daily pain keeping me from enjoying life and getting stuff done.

For so many examples we can not just have our cake and eat to too. I am open to any suggestions on this. For now I will remain thankful that I have any treatment and hopeful that I can set new goals and reach them such as gaining new employment with higher pay and more hours.

It is now taking me more time to write my blogs as my semester ended and my college took back the Dragon Naturally Speaking software so I no longer have talk to text. They even do a remote uninstall to make sure it is returned, It will cost me $99 to buy my own personal copy of the software.

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Fun Times Loving Life!

I wanted to talk about some fun times in my life as my blogs are very informative and true but fail to show how wonderful my life is and how thankful I am to be here. Tonight we are having spaghetti for dinner. But that doesn't sound very impressive to write about at all. The exciting part you ask?

Morel Mushrooms

Morchella, the true morels, is a genus of edible mushrooms closely related to anatomically simpler cup fungi. These distinctive mushrooms appear honeycomb-like in that the upper portion is composed of a network of ridges with pits between them. The ascocarps are prized by gourmet cooks, particularly for French cuisine. Commercial value aside, morels are hunted by thousands of people every year simply for their taste and the joy of the hunt.

Morels have been called by many local names; some of the more colorful include dryland fish, because when sliced lengthwise then breaded and fried, their outline resembles the shape of a fish; hickory chickens, as they are known in many parts of Kentucky; and merkels or miracles, based on a story of how a mountain family was saved from starvation by eating morels. In parts of West Virginia, they are known as molly moochers. Due to the partial structural and textural similarity to some species of the Porifera sponges, a common name for any true morel is sponge mushroom. Genus Morchella is derived from morchel, an old German word for mushroom, while morel itself is derived from the Latin maurusmeaning brown. Read more...

Our batch of Morel Mushrooms 2015!

My other half went out and found all but the three I located to prove they popped!

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I need a geneticist!!

I know Doctor Google can be very harmful for us and it is best to stay away from researching too much but I came across this article and it fit me so well that I can't help but wonder if I have type IV Ehlers Danlos Syndrome personally instead. My factor VIII was found to be low and borderline Von WIllebrand Disease was diagnosed. I have been having problems with pneumothorax as well. I am very nervous that my fundraiser wont take off and that I wouldn't be able to afford my child daycare and travel expenses to get myself properly checked out. I know I need to place my faith in the universe and believe that God has a plan no matter if I am comfortable with it or not. I could really use prayers today.

Check out the article that ruffled my feathers today here.

A special shout out and thank you to my supporters! You mean so much! You give me HOPE!

Ehlers Danlos Syndrome The Story of Pain

My Medical Journey Update

The goal was to get me into see a care team but we learned that Cincinnati Children's Hospital is booked until January. I am being sent to a round of different specialist doctors in the meantime. I will be taking the trip to Carmel, Indiana tomorrow and look forward to updating my supporters as I receive information. I also have an appointment with Methodist Hospital in Indianapolis, Indiana Scheduled for the afternoon of May 12th to address my clotting disorder. I have been to three different hematologists in regard to my opposing bleeding disorder. I will be seeing a vascular surgeon for this evaluation. 

I can't thank my supporters enough for being here for me during this journey! I am blessed and they give me hope!

Ehlers Danlos Family Contributions

It is time. 

One blog featuring families in need who have Ehlers Danlos Syndrome has been created. The mission of the blog is to provide one stop to find a way to donate to the various nonprofit centers for research to find a cure as well as individual families who need help.

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"1. Lack of information from doctors world wide. People with Ehlers Danlos Syndrome usually travel many miles to seek treatment due to scarce familiarity with the condition.


2. Systemic problems occur. Very few people or none with Ehlers Danlos Syndrome have no other medical problems diagnosed. The other diagnosis' are often but not always secondary diagnosis to the Ehlers Danlos Syndrome.



3. Often people with Ehlers Danlos Syndrome are minimized. They are told the problems, being so many, are all in their head. Many have been diagnosed with psychiatric disorders that do not fit them.



4. People with the Vascular type of Ehlers Danlos Syndrome have a lower life expectancy. People with any type are at risk for life threatening complications."

The hope is that for every $20.00 donated to the cure research that $1.00 is donated to one of the families currently struggling with this debilitating systemic congenital condition to aid them to a better quality of life. Such families are found along the right side of the blog.

This community really needs your help!

Click here to view: EDSFC

Our Family Has Been Blessed!

I can't thank you enough for your support!! I have an appointment that is two hours from my home and I now have the gas to go. We are very grateful.I couldn't have done it without your help. It just wasn't able to be added to the budget to afford this trip. God answers prayers! Thank you!

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