About Me

Hello! Thank you for viewing my blogs. I am a mother of two born in the early 80s. My boys were born 5/19/2006 and 5/5/2013. I was diagnosed with Ehlers-Danlos Syndrome Classical in August 2013 after going to a rheumatologist suspected of having an autoimmune problem both by symptoms and blood work. I left the office with an Ehlers-Danlos Syndrome diagnosis. I frequent many Facebook groups including Ehlers-Danlos support sites. I have other diagnostics which will I will list in the archives of my site. I live in the forest area of Indiana. I grew up all over the state of Indiana. My other family shows no signs of hypermobility except for my father who sat in a yoga position with both feet up in his lap. He complained of hand and wrist pains when it came to writing. I am the first and only in my family with this diagnosis. You do not have to be hypermobile to have Ehlers Danlos Syndrome. You do have to be in pain.

During this journey of life with a chronic illness, I hope to pick up friends to exchange support and encouragement.

I remember the appointment very well. The office staff gave me this long word that I had to have them write on a piece of paper for me. I went home and began to research "Ehlers-Danlos Syndrome." I never expected what I found to fit me so incredibly well. I have joined many support groups. Within the support groups, I have learned that there are many more common issues that we have though they are not on the lists available to describe us. One example is that I have yet to find somebody with Ehlers-Danlos Syndrome that does not see halos around lights in the night. As time goes on, I am learning exactly how debilitating this condition is. Although the pain remains the same, the stiffness and lack of ability increases.

If you need to contact me and are not a spammer, you may also write an email to my lowercase yahoo address. See combination below:

The email is my first name. amanda

The first letter of my last name. hudson

The number 14


Wednesday, October 1, 2014

Day One on New Drug Amitriptyline


Daily Journal,

I slept well last night although I got up in pain as I managed to pretzel myself up in my sleep again. I went back to asleep upon a new position. I woke groggy but pain was low. I took my 8 year old to school and came home to gather paperwork I needed to take to town. I took my 16 month old with me. I was doing ok getting him in and out of the carseat until the last stop to get WIC because he ran out of milk. I couldn't get him out of the cart! My mid back has a pain that I cant get rid of. I thought I would need to ask for help. Instead I pushed through the pain. Getting him and the groceries in seemed impossible. I hurt so bad.

I also woke up today with a split in the crease of my second to pinky toe. I have had this happen certain times of year since I was a kid. It feels worse than a paper cut. This one is pretty deep.

I feel very tired too. I took a nap this afternoon. The drug doesn't seem to affect my ability (or lack there of really) to control the racing thoughts that come with my anxiety. It's too bad I cant seem to get any treatment for that.

Will add more later if anything new comes up...

Its about 5 PM and I cant bend! My mid back is in full blown pain. Not cool.

Went to sleep and got up at 11 PM. Too late to take day 2! I have to work tomorrow.

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