About Me

Hello! Thank you for viewing my blogs. I am a mother of two born in the early 80s. My boys were born 5/19/2006 and 5/5/2013. I was diagnosed with Ehlers-Danlos Syndrome Classical in August 2013 after going to a rheumatologist suspected of having an autoimmune problem both by symptoms and blood work. I left the office with an Ehlers-Danlos Syndrome diagnosis. I frequent many Facebook groups including Ehlers-Danlos support sites. I have other diagnostics which will I will list in the archives of my site. I live in the forest area of Indiana. I grew up all over the state of Indiana. My other family shows no signs of hypermobility except for my father who sat in a yoga position with both feet up in his lap. He complained of hand and wrist pains when it came to writing. I am the first and only in my family with this diagnosis. You do not have to be hypermobile to have Ehlers Danlos Syndrome. You do have to be in pain.


During this journey of life with a chronic illness, I hope to pick up friends to exchange support and encouragement.


I remember the appointment very well. The office staff gave me this long word that I had to have them write on a piece of paper for me. I went home and began to research "Ehlers-Danlos Syndrome." I never expected what I found to fit me so incredibly well. I have joined many support groups. Within the support groups, I have learned that there are many more common issues that we have though they are not on the lists available to describe us. One example is that I have yet to find somebody with Ehlers-Danlos Syndrome that does not see halos around lights in the night. As time goes on, I am learning exactly how debilitating this condition is. Although the pain remains the same, the stiffness and lack of ability increases.



If you need to contact me and are not a spammer, you may also write an email to my lowercase yahoo address. See combination below:




The email is my first name. amanda

The first letter of my last name. hudson

The number 14

@yahoo.com

Monday, October 6, 2014

Nortriptylin October 6, 2014

I'm sorry I haven't posted in a while. I started my new drug and the sedation has worn off. I'm not sure what to think of this new one just yet. I'm just glad that I'm awake sometimes. I'm talking with Dragon NaturallySpeaking now. So far so good on the program. Deleting things can be kind of tricky. Often I have to delete an entire paragraph because it is difficult to tell it which word to remove and have it do so. I'm very happy about how much I can get down on a page without my wrist or hand hurting. I feel tired today, but that's because I did more activity than I normally do. Today I was crushing cans using a grabber to avoid bending over. It still wore me out. I feel like taking a nap. This is only my third day on this new drug.


Posted by at

No comments:

Post a Comment

Thank you for your post! Your comments will be approved within 48 hours.

Subscribe to: Post Comments (Atom)