About Me

Hello! Thank you for viewing my blogs. I am a mother of two born in the early 80s. My boys were born 5/19/2006 and 5/5/2013. I was diagnosed with Ehlers-Danlos Syndrome Classical in August 2013 after going to a rheumatologist suspected of having an autoimmune problem both by symptoms and blood work. I left the office with an Ehlers-Danlos Syndrome diagnosis. I frequent many Facebook groups including Ehlers-Danlos support sites. I have other diagnostics which will I will list in the archives of my site. I live in the forest area of Indiana. I grew up all over the state of Indiana. My other family shows no signs of hypermobility except for my father who sat in a yoga position with both feet up in his lap. He complained of hand and wrist pains when it came to writing. I am the first and only in my family with this diagnosis. You do not have to be hypermobile to have Ehlers Danlos Syndrome. You do have to be in pain.


During this journey of life with a chronic illness, I hope to pick up friends to exchange support and encouragement.


I remember the appointment very well. The office staff gave me this long word that I had to have them write on a piece of paper for me. I went home and began to research "Ehlers-Danlos Syndrome." I never expected what I found to fit me so incredibly well. I have joined many support groups. Within the support groups, I have learned that there are many more common issues that we have though they are not on the lists available to describe us. One example is that I have yet to find somebody with Ehlers-Danlos Syndrome that does not see halos around lights in the night. As time goes on, I am learning exactly how debilitating this condition is. Although the pain remains the same, the stiffness and lack of ability increases.



If you need to contact me and are not a spammer, you may also write an email to my lowercase yahoo address. See combination below:




The email is my first name. amanda

The first letter of my last name. hudson

The number 14

@yahoo.com

Monday, January 16, 2017

Edits Done Write


The time has come to start working out my future. I have been driving for ride-share companies such as Lyft and Uber. This work has brought in side income. Now is the time to focus on my career. I am a writer and editor. Having this condition has taken time away from creating and maintaining a proper portfolio. I have started an eBook but have only completed the first couple of chapters. My health has improved since the surgery. I have the usual pains, but the lung is no longer collapsing. Since the lung failure I wrote an article for The Mighty and to my surprise it was selected for publication.

https://themighty.com/2016/12/joint-hypermobility-syndrome-and-walking-in-snow/

 There were few or no editorial changes made to my article from what I could find. It did have a title change. I was pleased with this result.

I decided it was time to put my hard work towards an education to work for me. I opened a business for proofreading, editing, and peer review. I work on essays, résumés, book reports, emails, transcription, and more. I do hope this new job keeps me busy. My mind is always racing but by body can't keep up. I could be a writer, but my interest is in editing. It is a language by itself. My new website is available to view:

https://editsdonewrite.yolasite.com

I plan to be extremely careful with all future blog posts since potential clients could now view my work. I am excited to begin.
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2 comments:

  1. UnknownMarch 26, 2018 at 4:01 PM

    Hi! I'm also a writer/editor. I've been disabled for 12 years. Just recently, my optometrist suggested I look into whether I have EDS, POTS, MCAS, & other disautonomia conditions. (12 years ago the only thing "confirmable" was Sjögren's & Fibromyalgia.) Last week I was diagnosed with POTS. - Pamela

    I understand the whole body not being able to keep up with the mind thing. So true. This year, like you, I'm starting on my own journey to conquer this. Would love to connect!

    ReplyDelete
  2. UnknownMarch 26, 2018 at 5:26 PM

    Thank you for your comment!It is great to hear from someone like-minded. I have recently added photography into the mix. It was recent enough that I have only few listings.
    www.epicphotodownloads.etsy.com

    I would certainly love to connect with you.

    My e-mail combination to try to avoid spammers:
    The email is my first name. amanda

    The first letter of my last name. hudson

    The number 14

    @yahoo.com

    I look forward to staying in contact with you and your journey!

    ReplyDelete

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