About Me

Hello! Thank you for viewing my blogs. I am a mother of two born in the early 80s. My boys were born 5/19/2006 and 5/5/2013. I was diagnosed with Ehlers-Danlos Syndrome Classical in August 2013 after going to a rheumatologist suspected of having an autoimmune problem both by symptoms and blood work. I left the office with an Ehlers-Danlos Syndrome diagnosis. I frequent many Facebook groups including Ehlers-Danlos support sites. I have other diagnostics which will I will list in the archives of my site. I live in the forest area of Indiana. I grew up all over the state of Indiana. My other family shows no signs of hypermobility except for my father who sat in a yoga position with both feet up in his lap. He complained of hand and wrist pains when it came to writing. I am the first and only in my family with this diagnosis. You do not have to be hypermobile to have Ehlers Danlos Syndrome. You do have to be in pain.


During this journey of life with a chronic illness, I hope to pick up friends to exchange support and encouragement.


I remember the appointment very well. The office staff gave me this long word that I had to have them write on a piece of paper for me. I went home and began to research "Ehlers-Danlos Syndrome." I never expected what I found to fit me so incredibly well. I have joined many support groups. Within the support groups, I have learned that there are many more common issues that we have though they are not on the lists available to describe us. One example is that I have yet to find somebody with Ehlers-Danlos Syndrome that does not see halos around lights in the night. As time goes on, I am learning exactly how debilitating this condition is. Although the pain remains the same, the stiffness and lack of ability increases.



If you need to contact me and are not a spammer, you may also write an email to my lowercase yahoo address. See combination below:




The email is my first name. amanda

The first letter of my last name. hudson

The number 14

@yahoo.com

Monday, December 29, 2014

I've got Friends in Low Places


During my search and find for Ehlers Danlos Support I have come across a very good friend! Her name is Ashley. She has a website too with a ton of information!

Medicallyme.com

I am very thankful for the support groups available to me.

On a side note we came up with the money for me to go see my chiropractor at the end of the week wooohoo! I have been having a lot of trouble with my ribs, back, and chest lately.
Posted by at No comments:

Tuesday, December 2, 2014

More than the Beighton Scale/Score

Other signs of connective tissue disorder and hypermobility include the following:

Metenier's sign

Reverse-Namaskar


There are many more signs. EDSers will do this stuff as kids as "party tricks" and yes we realize nobody else seems to 

 be able to do it but we dont necessarily see ourselves as different. Gym class shows many people doing things that 

 others can not for instance. We were born this way and have to be told that it is different within the population norms.
Posted by at No comments:
Labels: , , , , ,
Subscribe to: Posts (Atom)